SPAGN (@sarcomapatients) 's Twitter Profile
SPAGN

@sarcomapatients

Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of Sarcoma, GIST and Desmoid Patient Advocacy Groups

ID: 372148796

linkhttp://www.sarcoma-patients.org calendar_today12-09-2011 07:12:35

5,5K Tweet

2,2K Followers

570 Following

SPAGN (@sarcomapatients) 's Twitter Profile Photo

🟡Early diagnosis of sarcoma is crucial. Delayed treatment often leads to advanced stages at diagnosis, according to a multi-decade study in Brazil. #SarcomaAwarenessMonth #EarlyDiagnosisSavesLives #SarcomaPatients Learn more here: ncbi.nlm.nih.gov/pmc/articles/P…

🟡Early diagnosis of sarcoma is crucial. Delayed treatment often leads to advanced stages at diagnosis, according to a multi-decade study in Brazil. #SarcomaAwarenessMonth #EarlyDiagnosisSavesLives #SarcomaPatients

Learn more here: ncbi.nlm.nih.gov/pmc/articles/P…
SPAGN (@sarcomapatients) 's Twitter Profile Photo

In a 2020 survey by Sarcoma UK, 1:3 UK sarcoma patients waited at least 6 months for an accurate diagnosis after first consulting a healthcare professional. Delays impact treatment options and survivability. Raise awareness this #SarcomaAwarenessMonth. #EarlyDiagnosisSavesLives

In a 2020 survey by <a href="/Sarcoma_UK/">Sarcoma UK</a>, 1:3 UK sarcoma patients waited at least 6 months for an accurate diagnosis after first consulting a healthcare professional. Delays impact treatment options and survivability. Raise awareness this #SarcomaAwarenessMonth. #EarlyDiagnosisSavesLives
SPAGN (@sarcomapatients) 's Twitter Profile Photo

When treatment is delayed due to improper diagnosis or lack of access to specialized treatment centers, patients have a much lower chance of survival according to a multi-decade study in Brazil. #SarcomaAwarenessMonth #EarlyDiagnosisSavesLives Learn more: ncbi.nlm.nih.gov/pmc/articles/P…

When treatment is delayed due to improper diagnosis or lack of access to specialized treatment centers, patients have a much lower chance of survival according to a multi-decade study in Brazil.
#SarcomaAwarenessMonth #EarlyDiagnosisSavesLives

Learn more: ncbi.nlm.nih.gov/pmc/articles/P…
SPAGN (@sarcomapatients) 's Twitter Profile Photo

Todavía está a tiempo de unirse a nosotros para «Julio Amarillo»: Un Webinar Especial para Pacientes con #Sarcoma en Latinoamérica Fecha y hora: 31 de julio de 2024, 18:30, São Paulo/Brasil Inscríbase ahora para reservar su plaza! bit.ly/SPAGN310724 #PacientesDeSarcoma

SPAGN (@sarcomapatients) 's Twitter Profile Photo

Byambajav Buyandelger is a #TGCT patient who was first misdiagnosed with arthritis. She waited more than three years to get the right diagnosis! #SarcomaAwarenessMonth cc: TGCT Support

SPAGN (@sarcomapatients) 's Twitter Profile Photo

Tuula Nikkilä of tells the story of her diagnosis with soft tissue sarcoma. #EarlyDiagnosisSavesLives #SarcomaAwarenessMonth

SPAGN (@sarcomapatients) 's Twitter Profile Photo

We need EVERY piece to complete the puzzle. As #SarcomaAwarenessMonth ends, let’s unite globally to transform sarcoma care - sharing knowledge & resources to achieve faster diagnoses, better treatments, and improved outcomes for all patients. Together, we can make a difference!

We need EVERY piece to complete the puzzle. As #SarcomaAwarenessMonth ends, let’s unite globally to transform sarcoma care - sharing knowledge &amp; resources to achieve faster diagnoses, better treatments, and improved outcomes for all patients. Together, we can make a difference!
Sandra P D'Angelo, MD (@sandrapdangelo) 's Twitter Profile Photo

Afamicel, TCR targeting MAGEA-4 approved for #synovial sarcoma. A remarkable advancement for our patients, laying the foundation for future efforts in solid tumors. businesswire.com/news/home/2024…

SPAGN (@sarcomapatients) 's Twitter Profile Photo

The results of the second phase of our #PrioritySettingPartnership (PSP) have just been published! This will help steer future research, aid funding agencies in assessments, and strengthen our role as patient advocates. Read here: bit.ly/PPRN2-paper #sarcoma #research

SPAGN (@sarcomapatients) 's Twitter Profile Photo

WHOA! We're only 135 responses short of 1,000 on our Global Sarcoma Diagnosis Pathway Survey! Sarcoma patients and caregivers, we need your input. Make your voice heard. Take the survey and pass it on! awareness.sarcoma-patients.org/survey

Chordoma Foundation (@chordomafdn) 's Twitter Profile Photo

Our friends at SPAGN are collecting data to better understand the diagnosis journey for sarcoma patients, with the goal of improving outcomes for those who come next. We encourage chordoma patients to participate: sarcoma-patients.org/spagn-diagnosi…

SPAGN (@sarcomapatients) 's Twitter Profile Photo

Thank you to the Irish Sun for featuring our friend and member Carol Haslam of Sarcoma Cancer Ireland. And congratulations on the new arm, Carol! thesun.ie/health/1365985…