In half an hour, Sarah Neuhaus will present an update from the PROVIDE and PROCEED studies in AAV9-based gene therapy for #GaucherDisease. Curious about PROVIDE? Here's a summary of our work in #GD2 👇 hubs.li/Q02xyyDp0

In "Video-based assessments of activities of daily living: generating real-world evidence in pediatric rare diseases", our authors explore the adoption of video #eCOA (vCOA). Would you like to know about #vCOA? Read the complete paper here 👇 hubs.li/Q02zXCjc0

🎉 Congratulations to Pip Hare Ocean Racing on her performance in the New York Vendée, finishing in 9th position after 12 days 23 hours 44 mins and 22 seconds at sea ⛵ Read about the rigours of #solosailing here 👇 hubs.li/Q02BvMLL0 #DigitalHealth #nyv2024 #newyorkvendee

Just 3 days until our next webinar! "Facilitating patient preference in rare #epilepsy studies", explores the importance of #patient preference when evaluating what evidence we need to show a drug’s efficacy. 🗓️ June 21, 2024 💻 Zoom - register here hubs.li/Q02CclHS0

It's #GlobalALSAwarenessDay so we're happy to share our poster, "Co-creation of new digital outcome measures in ALS" that outlines Aparito's approach to developing novel outcome measures for #ALS patients. View and download the poster here 👇 hubs.li/Q02CDPGP0 #eCOA

Last call for today's webinar, Facilitating Patient Preference in Rare #Epilepsy Studies, which starts in <30 minutes! 💻 Register here ⬇️ hubs.li/Q02CNKr20

On #XLHAwarenessDay, we revisit our publication "A patient-centred and multi-stakeholder co-designed observational prospective study protocol: Example of the adolescent experience of treatment for X-linked hypophosphataemia (#XLH)". Read the paper here 👇 hubs.li/Q02CPTX30

Our latest webinar is now available on demand! 🦋 View the recording of "Facilitating Patient Preference in Rare #Epilepsy Studies" with wrepihunter SynGAP Research Fund (SRF) and Fundación Síndrome de Dravet here 👇 hubs.li/Q02C_7R30 #eCOA #DigitalHealth

Aparito is ISO/IEC 27001:2022 certified! 🥳 This certification further strengthens the Atom5™ #eCOA platform and aligns with Aparito’s founding principles of privacy by design. 🛡️

Merci beaucoup, Paris. 🇫🇷 We met with our #DT4RD partners where our first patient joined for lunch and made cake for us 🍰 #Patient engagement with the project has been encouraging with over 80% on #ePRO adherence and >60% of videos passing quality control!

Exciting news from Brussels this week as the #5G4PHealth project officially launches! 🎉 This project brings together a diverse consortium of 16 entities from six European countries. 🌍 We're excited to see the collaboration and innovation that will come from this project! 🏥

Global pharmaceutical player Eli Lilly and Company has acquired Aparito, a #Wrexham-based med-tech business. Aparito has been at the forefront of accelerating drug development through the digitisation of decentralised clinical trials. Discover more: ow.ly/PnKP50SBcWa

Rydym yn gadael Aparito, busnes technoleg feddygol yn Wrecsam, gydag elw cychwynnol o 2.9x ar ein buddsoddiad o £1.2M. Bydd Aparito, sydd bellach wedi'i brynu gan Eli Lilly, yn parhau i weithredu gyda Dr. Elin Haf Davies yn Brif Weithredwr. Dysgu mwy: ow.ly/qSl750SM64s

📗New paper alert! 📗 In "Digital endpoints in clinical trials: emerging themes from a multi-stakeholder Knowledge Exchange event" the authors discuss how digital technologies can enable the decentralisation of #ClinicalTrials. Read the paper here 👇 hubs.li/Q02Kbg9G0

Welcome to the team, Tatti. What job title should we give her? We're thinking Head of Pawsitivity... 🐶

VPD Heart & Lung Research Institute Royal Papworth Hospital NHS FT 💙 Mark Toshner Charlotte Summers Aparito Royal Papworth Hospital Research Dept.

The science of solo sailing; find out more about our research into the impact of sleep and calories on an ocean race, in partnership with Aparito youtube.com/watch?v=vYt1hD… #solosailing #oceanracing #endurancesports

On #WorldDuchenneAwarenessDay, Duchenne UK and Aparito celebrate our decentralised validation study using home-based video assessments to track limb function in patients with #DMD. 📚 Recruitment is now ongoing. Discover more about the study here 👇 hubs.li/Q02NMx2J0