Sammy Ashby (@sammyatsudep) 's Twitter Profile
Sammy Ashby

@sammyatsudep

SUDEP Action CEO, Lead for SUDEP & Seizure Safety Checklist & EpSMon epilepsy tools, Migraine Advocate, ACEVO member & Wantage Literary Festival Volunteer

ID: 2841098235

linkhttps://www.sudep.org/ calendar_today22-10-2014 11:56:37

5,5K Tweet

1,1K Followers

613 Following

SUDEP Action (@sudepaction) 's Twitter Profile Photo

What could your workplace do for #SUDEPActionDay2024? Help us empower others through increased awareness of SUDEP and epilepsy risks, get in contact with [email protected] for ideas! To learn more about the day, head to: sudep.org/events/sudep-a… #SUDEP #epilepsy

Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

Are you an epilepsy researcher looking for a new challenge? Do you want to use your research to make a real difference to the lives of others? Why not apply to the SUDEP Action & Epilepsy Research Institute research fellowship? We look forward to hearing from you!

Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

I'll be taking part in #MyWayto5k again this year, will you? The only question is how I'll complete my 5k...... 🤔 #SUDEPActionDay2024

SUDEP Action (@sudepaction) 's Twitter Profile Photo

Welcome back Jo to the SUDEP Action Comms team! She’ll be looking after our new website and helping to share our stories to new audiences. Get to know the team: sudep.org/about-sudep-ac… #sudepaction #SUDEP #epilepsy

Welcome back Jo to the SUDEP Action Comms team! She’ll be looking after our new website and helping to share our stories to new audiences.

Get to know the team: sudep.org/about-sudep-ac… 

#sudepaction #SUDEP #epilepsy
SUDEP Action (@sudepaction) 's Twitter Profile Photo

A new paper strongly supports our research into the impact of #COVID-19 on the epilepsy community. SUDEP Action partnered with University of Oxford back in 2020 to highlight the risks, harms and challenges during the pandemic: tinyurl.com/ybzjx4z6 #SUDEP #epilepsy

A new paper strongly supports our research into the impact of #COVID-19 on the epilepsy community. SUDEP Action partnered with <a href="/UniofOxford/">University of Oxford</a> back in 2020 to highlight the risks, harms and challenges during the pandemic: tinyurl.com/ybzjx4z6

#SUDEP #epilepsy
SUDEP Action (@sudepaction) 's Twitter Profile Photo

SUDEP Action believes the lack of MHRA transparency and consultation on the Prevent Programme is outside the range of what is reasonable or acceptable. So too, is the MHRA disregard for informed consent and shared decision-making. #epilepsy #SUDEP #seizures

SUDEP Action believes the lack of MHRA transparency and consultation on the Prevent Programme is outside the range of what is reasonable or acceptable. So too, is the MHRA disregard for informed consent and shared decision-making.

#epilepsy #SUDEP #seizures
Kim Morley (@epilepsymidwife) 's Twitter Profile Photo

News! Maternity epilepsy toolkit has been updated to help guide #women #epilepsy, #maternity #obstetric #neurology teams with management in #pregnancy, #delivery & #postnatal. Free from womenwithepilepsy.co.uk Epilepsy Action SUDEP Action Epilepsy Society RoyalCollegeObsGyn Royal College of Midwives 💙

SUDEP Action (@sudepaction) 's Twitter Profile Photo

Good luck to our amazing runners for the #GreatNorthRun, on Sunday! Tom: tinyurl.com/529uw554 Eloise: tinyurl.com/2nb6d2v7 Rose & Simon: tinyurl.com/2h8jjmca Fergus: tinyurl.com/57be2njd Tom P: tinyurl.com/4na73r49 #epilepsyawareness

SUDEP Action (@sudepaction) 's Twitter Profile Photo

Are you a researcher interested in finding out how to reduce the risk of SUDEP and other preventable epilepsy deaths? Apply to the SUDEP Action Fellowship: sudep.org/applications-o… #SUDEP #epilepsy #seizures

Are you a researcher interested in finding out how to reduce the risk of SUDEP and other preventable epilepsy deaths?

Apply to the SUDEP Action Fellowship: sudep.org/applications-o… 

#SUDEP #epilepsy #seizures
Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

Will you join us for this year's MyWayto5k? Every person who registers to take part helps SUDEP Action continue to be there for others. You really can help us to make a difference 🧡💜

SUDEP Action (@sudepaction) 's Twitter Profile Photo

Come along to our Liverpool Coffee Club this Saturday, from 1.30pm to 3.30pm. Head to Paignton on the 5th October for the next Coffee Club, from 10:30am to 12:30pm. Meet others bereaved by #epilepsy in a safe and understanding environment. For more details: [email protected]

Come along to our Liverpool Coffee Club this Saturday, from 1.30pm to 3.30pm. 

Head to Paignton on the 5th October for the next Coffee Club, from 10:30am to 12:30pm.

Meet others bereaved by #epilepsy in a safe and understanding environment.

For more details: info@sudep.org
SUDEP Action (@sudepaction) 's Twitter Profile Photo

People with epilepsy and their families want to be told about #SUDEP and #epilepsy risks so they can take necessary actions to live more safely. Help us spread awareness by sharing #OurRisksOurRights on Oct 16th for #SUDEPActionDay2024

People with epilepsy and their families want to be told about #SUDEP and #epilepsy risks so they can take necessary actions to live more safely.

Help us spread awareness by sharing #OurRisksOurRights on Oct 16th for #SUDEPActionDay2024
Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

Could you take part in this year's #MyWayTo5k to help raise vital awareness and funds for SUDEP Action? Simply registering to take part helps us to make a real difference to the lives of others - so what are you waiting for?

Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

A fantastic effort from our Great North Runners! A tough race, in tough weather but a wonderful total raised to help SUDEP Action continue to help others. Thank you! 🧡 Fancy taking part next year? Get in touch, or sign up direct here: greatrun.org/events/great-n…

SUDEP Action (@sudepaction) 's Twitter Profile Photo

Want to run for SUDEP Action? Take part in one of the UK's most established road races - the Bath Half Marathon! Sign up now and start training for 16th March 2025: runforcharity.com/sudep-action-/… If you have any questions, get in touch with Lauren at [email protected] #SUDEP

Want to run for SUDEP Action?

Take part in one of the UK's most established road races - the Bath Half Marathon! 

Sign up now and start training for 16th March 2025:
runforcharity.com/sudep-action-/… 

If you have any questions, get in touch with Lauren at fundraising@sudep.org

#SUDEP
SUDEP Action (@sudepaction) 's Twitter Profile Photo

Grief touches anyone affected by an epilepsy-related death. Our support line is open for anyone who needs to talk. Call our support team on 01235 772852 or email in on [email protected] #SUDEP #epilepsy

Grief touches anyone affected by an epilepsy-related death. Our support line is open for anyone who needs to talk.

Call our support team on 01235 772852 or email in on support@sudep.org 

#SUDEP #epilepsy
SUDEP Action (@sudepaction) 's Twitter Profile Photo

If you live in the South-West region and want to talk to others who know what it’s like to be bereaved by epilepsy, come along to our Paignton, Torbay Coffee Club meeting from 10:30am-12:30pm. For more information, get in contact with Vicky on [email protected] #SUDEP #epilepsy

If you live in the South-West region and want to talk to others who know what it’s like to be bereaved by epilepsy, come along to our Paignton, Torbay Coffee Club meeting from 10:30am-12:30pm.

For more information, get in contact with Vicky on info@sudep.org 

#SUDEP #epilepsy
Sammy Ashby (@sammyatsudep) 's Twitter Profile Photo

Every person who takes part in MyWayto5k helps SUDEP Action with its work to stop preventable epilepsy deaths and providing free information, support and services to those living with and bereaved by epilepsy. A small action that can have a huge impact - will you be signing up?