We are excited to share our 15th C-POS study newsletter. Please get in touch for more info on the project, or to request a PDF copy #pedpc @GenrYPAGs Nursing, Midwifery & Palliative Care at King's 💙 APCA ICPCN Palliative Medicine Nursing in Practice The Association for Paediatric Palliative Medicine King's College NHS Rays of Sunshine Cure and Action for Tay-Sachs (CATS) Foundation

Our next Bristol Palliative and End of Life Care Research Research Network meeting is on 20th Feb - another collection of great speakers and topics, including PhD presentations on queer families, hospital admission decisions, and equity in bereavement support. Register (free) at shorturl.at/dN058

We are working to understand and reduce inequities in access to bereavement support for people from ethnically diverse communities. But an important part of that is learning from bereavement support services about the AMAZING work you are already doing. What does good look like?

Delighted to see this Cicely Saunders Institute at King's @cyp_csi paper out in Palliative Medicine . This was a rare opportunity to examine how children talk about and make sense of their own conditions. Using discourse methods enabled us to identify ways to help clinicians to 'do' child centredness.

SCHN 20th PPC Symposium: incredible to hear from Aisha & Holi on the Adolescent & Young Adult Hospice in Northern Sydney- “Australia's first dedicated service for young people with life-limiting illness” - & the amazing volunteer service that was integrated into the hospice🌟

Over 400 people have now participated in the C-POS questionnaire study! This makes us one of the largest primary data #pedpc studies ever! Thank you to everyone who has taken part and to the 76 UK sites who continue to recruit to the study to reach our target of 600 participants!

With the support of 76 UK sites, and over 400 participants (and counting!), awesome that Lorna Fraser is sharing this timely update on behalf of Daney Harðardóttir today 🥳

Development and psychometric evaluation of Children’s Palliative Care Outcome Scale (C-POS)- Prof Lorna Fraser, from King's College London

What a wonderful way to end the POS/IPOS training days Cicely Saunders Institute at King's, celebrating the successes of the C-POS (Children’s Palliative care Outcome Scale), with a few of the team (missing those not here!) CYP Research in Palliative Care

Pleased to share that the final paper from my PhD - cogntive testing of the Children's Palliative care Outcome Scale (CPOS) has just been published in Palliative Medicine. Read it here: journals.sagepub.com/doi/10.1177/02…. Cicely Saunders Institute at King's CYP Research in Palliative Care #pedpc

We have recruited our 450th participant to the C-POS questionnaire study! Thank you to everyone who has taken part and to the 76 UK sites who continue to recruit to the study to reach our target of 600 participants!

Boarding the flight for #EAPC2024 …and lovely to unexpectedly see the friendly face of the one and only Dr Emel Yorganci 😃 Looking forward to lots more friendly faces over the next few days in Barcelona ☀️EAPC VZW

Amazing to hear from Dr Jo Bayly earlier #EAPC2024 on the brilliant INSPIRE trial: multi-methods, wonderful to see equity & inclusivity built-in, exciting progress across many European countries (with lots in the audience 👏🏽) palliativeprojects.eu/inspire/ EAPC VZW Matt Maddocks Cicely Saunders Institute at King's

Sabrina Bajwah 💙 - “Through inequality and pain I have found passion and purpose.” You are such an inspiration Sabrina. Your bravery in putting your head above the parapet and your commitment is a catalyst for positive change. Thank you. #EAPC2024 EAPC VZW Cicely Saunders Institute at King's

🚨 There's a new studentship at Cicely Saunders Institute at King's Applications for the Dunhill Medical Trust – Saunders PhD Programme are now open until 10 June. More info about award details, eligibility criteria and application guidelines are below ⬇️ buff.ly/3UTpiBk

What a milestone! So grateful to all of the committed hospital, hospice and community teams who are helping us recruit children with life-limiting conditions and their parents to this study. Your work is invaluable🌟

The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (DaniellaLogunFoundation (DLF) Fabian's Childhood Cancer Trust). We're in our final week of recruiting families to our study before analysis begins

What are the benefits, risks, barriers & facilitators to implementing PCOMs into paediatric palliative care #pedpc? Hannah Scott led a qualitative interview study to find out. 📰Full article: doi.org/10.1177/026921… 🔊Podcast: traffic.libsyn.com/secure/sagepal… / podcasts.apple.com/gb/podcast/sag…

Delighted that our paper exploring confidence of care home staff to provide palliative and end of life care is out now! Part of the CovPall Care Homes study and my NIHR pre-doctoral fellowship with Prof Catherine Evans Prof Katherine Sleeman Andy Bradshaw Anna Bone doi.org/10.1186/s12904…

We are excited to share our final C-POS study newsletter. Please get in touch for more information on the project, or to request a PDF copy of the newsletter #pedpc Lucy Coombes Debbie Braybrook (she/her) Hannah Scott Children's Health Queensland Starship Foundation Cicely Saunders Institute at King's EAPC VZW Palliative Medicine