ADARC (@adarc_uoa) 's Twitter Profile
ADARC

@adarc_uoa

Researching Dysautonomias and Arrhythmias to improve patient outcomes. University of Adelaide | SAHMRI | CALHN

ID: 1671824564706222081

calendar_today22-06-2023 10:17:11

32 Tweet

70 Followers

128 Following

Celine Gallagher (@celinegallaghe2) 's Twitter Profile Photo

Dennis H Lau and Marie-Claire Seeley delivering the opening plenary at ACRA2024 on the challenges facing those living with #POTS ➡️ long diagnostic delays, esp women ➡️no ICD code ➡️ no TGA approved medication We need to do better Australian POTS Foundation ACRA

<a href="/DH_Lau/">Dennis H Lau</a> and <a href="/mcseeley/">Marie-Claire Seeley</a> delivering the opening plenary at <a href="/ACRAASM/">ACRA2024</a> on the challenges facing those living with #POTS
➡️ long diagnostic delays, esp women
➡️no ICD code
➡️ no TGA approved medication 

We need to do better <a href="/AustralianPots/">Australian POTS Foundation</a> <a href="/ACRA_ACRA/">ACRA</a>
Australian POTS Foundation (@australianpots) 's Twitter Profile Photo

Our conference is moving dates to avoid the AFL “gather round”. 22nd/23rd March 2024. Lock it in! Satish R Raj will be our keynote speaker 🙌🏻#LongCovid #dysautonomia #POTS instagram.com/p/CwtKd_chrdo/…

ADARC (@adarc_uoa) 's Twitter Profile Photo

Our article on access to assessment for treatment of #POTS in #LongCOVID in Australia highlights the need for urgent funding for ‘models of care’ that address #autonomic dysfunction after COVID infection.

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Privileged to be speaking at WA School Nurses conference today to raise awareness of #POTS and #longCOVID amongst adolescents. #schoolnurses are at coal face of this epidemic and need better resources. @Ausgov needs to fund patient bodies like Australian POTS Foundation to deliver these.

ADARC (@adarc_uoa) 's Twitter Profile Photo

>300000 people are expected to have #LongCOVID in Australia. #POTS is the major phenotype of this disorder. Still Aus. languishes with no #fundPOTS from Australian Government

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Thrilled that this review which showcases the role of nurses in #POTS assessment and management has been published. Thanks to ⁦Celine Gallagher⁩ who works tirelessly to bring this work to fruition. dovepress.com/postural-ortho…

Australian POTS Foundation (@australianpots) 's Twitter Profile Photo

Early bird registrations for our #POTS conference close on the 31st January. Get your tickets here events.humanitix.com/better-togethe…

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Today our #LongCOVID study drew to a close. 150 amazing people who gave up their energy and time and trusted us. 🙏🏻 to Celine Gallagher and Gemma Wilson ADARC researchers who gave so much time to help. #POTS is prevalent in #PASC !

Celine Gallagher (@celinegallaghe2) 's Twitter Profile Photo

Happy Mothers Day and International Nurses Day! Two female dominated populations most likely to be affected by #POTS. Despite this Australia does not have any widely accessible public clinics, medicine on the PBS or support through NDIS. Not good enough….Ged Kearney ADARC

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

Today I’m privileged to stand alongside Helen Eftekhari PoTS UK to deliver two scientific presentations on #POTS at #ACNAP2024 Nurse researchers in #POTS are truely an endangered species with only a handful of us in the world. We need more of us! Australian POTS Foundation

Today I’m privileged to stand alongside Helen Eftekhari <a href="/UKPoTS/">PoTS UK</a> to deliver two scientific presentations on #POTS at #ACNAP2024 Nurse researchers in #POTS are truely an endangered species with only a handful of us in the world. We need more of us! <a href="/AustralianPots/">Australian POTS Foundation</a>
Australian POTS Foundation (@australianpots) 's Twitter Profile Photo

Thanks ⁦Jessica Adamson⁩ for highlighting the barriers those with #POTS face in getting care in Australia. 🙏This article is behind a paywall but highlights the work of ⁦Australian POTS FoundationCeline Gallagher⁩ ⁦Dennis H Lau⁩ ⁦Marie-Claire Seeley⁩ adelaidenow.com.au/news/opinion/a…

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

I’m thrilled to have been awarded my PhD today after what feels like a whirlwind three and a half years of study. Thank you to my awesome supervision team. Dennis H Lau Celine Gallagher and Amanda Page. ADARC #POTS #LONGCOVID

ADARC (@adarc_uoa) 's Twitter Profile Photo

ADARC represented in the inaugural SA CVRN research awards. 🙌Highlighting #POTS researchers who work with little 💲 to shine a light on this debilitating condition. 🙏Heart Foundation for supporting SA research. Marie-Claire Seeley Australian POTS Foundation Celine Gallagher Dennis H Lau

SA CVRN (@sacvrn) 's Twitter Profile Photo

Dr Marie-Claire Seeley Marie-Claire Seeley Uni of Adelaide is SA CVRN PhD Rising Star in Clinical Medicine & Science. Her primary research focus is postural orthostatic tachycardia syndrome (POTS) #sacvrn_awards Heart Foundation Celine Gallagher Read more researchers.adelaide.edu.au/profile/marie-…

Marie-Claire Seeley (@mcseeley) 's Twitter Profile Photo

An excellent article by Dr. Satish Raj’s Research Team Jacquie baker showing 👇🏻stroke volume & cerebral perfusion drives hyperventilation in #POTS This highlights the importance of targeting treatment strategies to increase volume and support circulation in #POTS